John 15

John 15
‘I am the vine, you are the branches'

Monday, May 4, 2015

Blogging Sojourn

Much has happened during my blogging sojourn. Honestly, I didn't really know what to blog about nor could I tell you what week I am in. I stopped counting after week 19 to stay focused on my recovery. While bone growth is good and hip stability is much improved, my muscles have been stubborn in responding to the "corrected" muscle firing pattern causing them to respond in erratic ways. It's really a hard balance to guess when my muscles might give out causing my leg to lock up.

It's funny how dysplasia effects people. There are a variety of symptoms; however, I have found only 1 or 2 other people that sustained muscle and nerve damage from it. Most people have experienced the muscular pain from dysplasia, but very few reach the point of damage. While my doctors and I are optimistic that the damage is not permanent, it doesn't take away the frustrations from recovery and the mudslide of emotions that accompany it.

For those following my blog, my recovery has been excellent. My situation is atypical regarding muscle recovery. Most individuals experience tightness until their strength comes back and that's about it. They don't have to guess when their muscles will give out.

I am seeing two of the top Physical Therapist in my area. They both have been nothing short of a miracle in helping me slowly move forward. I have learned more than I ever expected to about the hip, pelvic area, muscles, and how they all entwine. If I am to be honest, I never really planned on learning about all of this. From their explanations, I have surmised that while my recovery may be slower and more problematic, they know what they are doing preserve and bring my muscles back on-line (neuromuscular re-education).

If you have not had to deal with pain for an extended period of time, it's hard to explain the mindset you put yourself in to survive. The day revolves around "what can I do to prevent major pain or set backs". When I have a few days without pain, it's pure bliss and my "stay out of pain" mindset slowly fades away. Therefore, when I encounter a flair up, it requires great mental strength to not cycle into the pre-PAO PTSD state.. and yes, I really used the term PTSD. The state of counting steps, figuring out what errands have to be done to survive, cooking or laundry?

There is a purpose to everything in life. This is one of those times that I will have to put my faith in God and trust the path that has been set out for me to walk.


  1. Colleen, I'm sorry you're dealing with muscle issues still. This can be a long, frustrating road to travel. I'm thinking about you and rooting for you as you continue on the road to recovery. I'm 2 years and 1 years post-PAOs. I'm still having issues on the 2-year post-PAO side. I've seen multiple PTs, all whom have different ideas of what the issue is. Nonetheless, I'll be heading back to PT yet again for more guidance. I give myself daily pep-talks. I tell myself that without my PAOs, I'd be so much more limited. Life is never perfect, but that doesn't mean we can't continue to move forward with gusto and fire. Every moment, every step, is a gift. Keep on keepin on moving forward in your journey! I'll be following your progress.

  2. Thank you for sharing. I am sad to hear that another person has to go through this, but it's nice to know that I'm not the only one. Keep me posted as you navigate the PT world.