John 15

John 15
‘I am the vine, you are the branches'

Thursday, May 7, 2015

Another "HIP" to moore

Yes, my right hip is wrecked, far more than my left. Dr. Olson has some pretty fancy "mooring" work to do on my right hip. My MRI results came out a few weeks back, but I have needed some time to digest. From the splotches of words in English I was able to understand this:
  • Right hip labral tear
  • cyst
  • glute tendon tear
  • cartridge is stating to wear down from the tears

The question that has been tugging at the back of my mind is will I still be eligible for a PAO. I feel in my heart that I will be, that the joint hasn't completely degraded and given the muscular problems I have been dealing with as an effect from the dysplasia, it's still seems like the right move to perform the surgery, fix the labral tear, and put my tendon back on my arse so it stops sagging :)

My hope and prayer to the Lord can be summed up in this prayer:

"God, Lord Jesus,  please help me 

I desperately need You right now
I'm all wrung out and I've nothing left
Somehow I need You to turn things around
God, can you help me"

As any other PAO patient can attest to, this is a long journey. There are many days I wonder how much longer this will all go on. In my mind, I am the young 30 something girl without limitations, but then screaming kids pull be back into reality. There are days I'm at the end of the my rope wanting this to be gone and other days I'm calm and stable. 

The bottom line is, I will have surgery of some kind. For those that read this, I ask that you pray that my surgeon is willing to move forth with the PAO. This would provide my body with proper alignment reducing stress on the muscular system allowing me to fully rehabilitation. When I try to explain complications caused by dysplasia to people, I explain hips are similar to a bridge. A badly built bridge stresses other structural components. Hips are no different. Because my hips are off, my muscles have become overly stressed. People seems to get that. 

So, in patience I will wait, with one week to go with this verse playing rewind in my  head: 

Philippians 4:6 

Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.

Monday, May 4, 2015

Blogging Sojourn

Much has happened during my blogging sojourn. Honestly, I didn't really know what to blog about nor could I tell you what week I am in. I stopped counting after week 19 to stay focused on my recovery. While bone growth is good and hip stability is much improved, my muscles have been stubborn in responding to the "corrected" muscle firing pattern causing them to respond in erratic ways. It's really a hard balance to guess when my muscles might give out causing my leg to lock up.

It's funny how dysplasia effects people. There are a variety of symptoms; however, I have found only 1 or 2 other people that sustained muscle and nerve damage from it. Most people have experienced the muscular pain from dysplasia, but very few reach the point of damage. While my doctors and I are optimistic that the damage is not permanent, it doesn't take away the frustrations from recovery and the mudslide of emotions that accompany it.

For those following my blog, my recovery has been excellent. My situation is atypical regarding muscle recovery. Most individuals experience tightness until their strength comes back and that's about it. They don't have to guess when their muscles will give out.

I am seeing two of the top Physical Therapist in my area. They both have been nothing short of a miracle in helping me slowly move forward. I have learned more than I ever expected to about the hip, pelvic area, muscles, and how they all entwine. If I am to be honest, I never really planned on learning about all of this. From their explanations, I have surmised that while my recovery may be slower and more problematic, they know what they are doing preserve and bring my muscles back on-line (neuromuscular re-education).

If you have not had to deal with pain for an extended period of time, it's hard to explain the mindset you put yourself in to survive. The day revolves around "what can I do to prevent major pain or set backs". When I have a few days without pain, it's pure bliss and my "stay out of pain" mindset slowly fades away. Therefore, when I encounter a flair up, it requires great mental strength to not cycle into the pre-PAO PTSD state.. and yes, I really used the term PTSD. The state of counting steps, figuring out what errands have to be done to survive, cooking or laundry?

There is a purpose to everything in life. This is one of those times that I will have to put my faith in God and trust the path that has been set out for me to walk.